My sweet boy Jenson was born with mega esophagus, we were told to put him down, but even if there was the slightest hope he would live we ran with it. I fed him upright in my arms ever 2 hours with a syringe, and carried him until he was too big in a carrier on my chest to help his food go down. Our sweet boy made it to 6 months, and was the absolute joy of our lives. He passed on March 12th, and my world is not the same without him. I miss him more than I could ever say, but know he is with my dad in heaven, no more struggle or pain. I love you my Jenny JJ with my whole heart forever and will see you again. Have those sweet kisses ready. Mom